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My Story

Long COVID turned me into a different person — and I'm grieving who I was

Riley
Before COVID I was running half marathons. I was a project manager. I went out with friends three nights a week. I got COVID in January 2024 — "mild" case, five days of symptoms, tested negative, went back to work. Then the fatigue hit. Then the brain fog. Then the POTS symptoms. Two years later I can work maybe 4 hours a day on a good day. I found this community last week and for the first time I don't feel like I need to justify or explain why I'm not "better yet."

3 Replies

Kelly

Riley, you never have to justify anything here. Ever. The grief of losing who you were is one of the most painful parts of chronic illness. You're not living someone else's life — you're living YOUR life, it just looks different now than you planned. That doesn't make it less valid or less yours. I'm really glad you found us.

Jordan

The losing friends part is so painful and so common. The people who stay are the ones worth keeping. And this community is full of people who get it. Welcome Riley.

Morgan

"Mild case." God I hate that word. My case was "mild" too. Welcome to the club nobody wanted to join. You're in the right place.

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