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finally telling people about my condition

mariah_j
for the past 2 years ive basically kept my lupus diagnosis a secret from everyone except my immediate family. i was ashamed? scared? i dont even know. i just didnt want people to look at me differently or treat me like im fragile. but last week i told my two closest friends and they were... so kind. one of them cried. the other one said "that explains so much" and then hugged me for like 3 minutes straight. i feel lighter. like ive been carrying a backpack full of rocks and i just took some of them out. not all of them. but some. if your keeping your condition secret because youre scared of how people will react, i get it. but the right people wont run. they might surprise you.

4 Replies

shade_seeker

"like ive been carrying a backpack full of rocks and i just took some of them out" — what a perfect way to describe it. Keeping a secret that affects your daily life is EXHAUSTING on top of the exhaustion the illness already causes. I kept my lupus secret for about a year and a half. When I finally told people, the relief was immediate and enormous. Not everyone will be kind about it but the ones who matter will be. Proud of you for telling your friends.

beckyg

ive been thinking about telling my friends about my fibro and this post might be the push i needed. im just so scared of the "but you dont look sick" response. or worse, the people who suddenly start treating you like youre made of glass. but youre right. the right people wont run. i just have to trust that.

jess

i just told my two best friends about my MS diagnosis last week too. one of them asked me a million questions (in a caring way) and the other just said "ok what do you need from me" and honestly both responses were perfect. the secret keeping was making everything harder. glad we're both done with that

user_9013

still working up the courage over here. but this helps.

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